EducationHealth EducationPatient Stories

Early Intervention and a Beaming Smile: Living with Autism

Jake Grant is six years old. He is the apple of his mom’s eye, adept at sneaking out of his bed, and a lover of everything outdoors. Jake has mild to severe autism and what has made the biggest difference for him, says his mom – Jen, is early intervention.

Jake was diagnosed at the age of 2 after his preschool teachers flagged his behavior and milestones for seeming atypical. ā€œI was so grateful to them,ā€ says Jen. She explains that the teachers were nervous to discuss this with her, but she knew that getting an early diagnosis can help multitudes for a positive prognosis.

ā€œThat conversation was a real feel-good moment, full of acceptance and compassion,ā€ says Jen. ā€œI knew we lost a little bit of time due to being put on waitlists to see doctors,ā€ she says, ā€œbut there are not enough resources, and the need is high.ā€

However, the typical age for an autism diagnosis is four or sometimes even later – school age. And according to many studies, the earlier, the better. Jen is seeing this reflected in her son every day.

Jake and his family ā€œhit the ground runningā€ when it came to getting help. ā€œHe has speech therapy and occupational therapy,ā€ Jen explains that the game-changer was the Medicaid waiver which allowed him to enroll in Applied Behavior Analysis (ABA) and rolfing – a type of bodywork that reorganizes the connective tissues that permeate the entire body.

ā€œAs parents we want our kids to be happy, and I just knew that for a child with special needs it’s just going to be a little harder to get there,ā€ says Jen. An interesting attribute of Jake, explains Jen, is that his diagnosis doesn’t seem to fit into any particular ā€œmoldā€ of autism. ā€œHe’s a sensory kid. But that means he lives for the outside, going fast (tubing and skiing are favorites), and wants to sleep with all the lights on.ā€

For all the positives, Jen admits that it’s hard. And some days are more difficult than others. ā€œThere are seasons of sadness, especially during well-child checkups,ā€ she says. But the celebrations come when she sees changes and growth because of therapy. She has also learned to become an advocate for Jake.

ā€œTo me, inclusion means that all my kids go to school together,ā€ she says. Their school suggested that Jake attend another school eight miles away to take classes with other children who have autism. ā€œI said no. I want him to see the neighborhood kids, and for him to see his brother and sister in the hallway. ā€œI understand there are protocols and policies in place,ā€ she says, ā€œbut I’ve learned most have been designed to protect the school. Parents must advocate for their children.ā€

And on both good and ā€˜off’ days, there is always Kalyra, the MGA Occupational Therapist who works with Jake in the family’s sensory gym. Play-focused therapy allows Jake to move as much as he wants. Jen gets a snack, maybe even a break, and then it’s back to taking care of her kids. ā€œMGA is an extension of my family,ā€ she says. ā€œAnd for that, I’m grateful.ā€ Learn more about autism here.

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